Comments on: Trinity’s Health And Why I Haven’t Been Around http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/ Raising a Healthy Family Without Religion. Thu, 20 Nov 2008 09:38:12 +0000 http://wordpress.org/?v=2.6.1 By: Zoe http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3503 Zoe Fri, 08 Sep 2006 00:06:49 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3503 Noelle, thinking of you & yours. Much love & hugs. Noelle, thinking of you & yours. Much love & hugs.

]]> By: Duncan Crary, (of IHS/HNN) http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3481 Duncan Crary, (of IHS/HNN) Thu, 07 Sep 2006 19:39:06 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3481 Noell, I wish I could say something more profound. But my thoughts are with you and your family. I hope that everything will be better soon. You and your family are a real inspiration to a lot of people and we're all so very greatful that you've opened up your lives to us. Noell,

I wish I could say something more profound. But my thoughts are with you and your family. I hope that everything will be better soon. You and your family are a real inspiration to a lot of people and we’re all so very greatful that you’ve opened up your lives to us.

]]> By: Sideon http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3447 Sideon Wed, 06 Sep 2006 05:48:08 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3447 I wish you and your family well. Sending thoughts of white light your way. -Donavan I wish you and your family well.

Sending thoughts of white light your way.

-Donavan

]]> By: Bishop Rick http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3443 Bishop Rick Tue, 05 Sep 2006 23:50:00 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3443 Noell, Nothing but the best from all of us to you and your family. Noell,

Nothing but the best from all of us to you and your family.

]]> By: Lindsey http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3438 Lindsey Tue, 05 Sep 2006 18:08:24 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3438 Noell-- Like everyone, I thinking good thoughts for you and your family, and hoping for the best. Stay strong. Noell–

Like everyone, I thinking good thoughts for you and your family, and hoping for the best. Stay strong.

]]> By: Terry S. http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3299 Terry S. Mon, 04 Sep 2006 04:10:40 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3299 Noell, We went thru a difficult period with our younger son starting around his second year due to asthma. It got pretty serious for a couple of years, but happily, he grew out of it. The only remnant seems to be a rather virulent allergy to cats. When I see photos of him during that time, I'm amazed. He looks so wan and frail. But now, at 25 he ran the mini-marathon last May. Hopefully, whatever is going on with Trinity will also fade away. I fully agree with Greg100 and the others. Continue to educate yourself as best you can. Be in control as much as possible. Ask questions. Listen to the answers. Then ask more questions. Ask stupid questions. Write everything down. Leave nothing to chance. We humans are pulling for you and Trinity. TLS Noell,

We went thru a difficult period with our younger son starting around his second year due to asthma. It got pretty serious for a couple of years, but happily, he grew out of it. The only remnant seems to be a rather virulent allergy to cats. When I see photos of him during that time, I’m amazed. He looks so wan and frail. But now, at 25 he ran the mini-marathon last May.

Hopefully, whatever is going on with Trinity will also fade away. I fully agree with Greg100 and the others. Continue to educate yourself as best you can. Be in control as much as possible. Ask questions. Listen to the answers. Then ask more questions. Ask stupid questions. Write everything down. Leave nothing to chance.

We humans are pulling for you and Trinity.

TLS

]]> By: Katy http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3297 Katy Mon, 04 Sep 2006 03:24:21 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3297 Oh, I'm so sorry to hear that she had a second seizure. I will keep you all in my thoughts. Oh, I’m so sorry to hear that she had a second seizure. I will keep you all in my thoughts.

]]> By: Olga http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3295 Olga Mon, 04 Sep 2006 02:12:45 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3295 Your family is so fortunate to have such a caring, loving and bright mom. And I do hope Trinity will be fine. Your family is so fortunate to have such a caring, loving and bright mom. And I do hope Trinity will be fine.

]]> By: Lisa http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3293 Lisa Sun, 03 Sep 2006 18:50:38 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3293 You are an awesome mom, and this just proves it. You put your children and your mental health before other concerns. Take care of your babies and don't worry ... your fans will still be around when you are ready. My thoughts are with you. You are an awesome mom, and this just proves it. You put your children and your mental health before other concerns. Take care of your babies and don’t worry … your fans will still be around when you are ready. My thoughts are with you.

]]> By: Kris http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3286 Kris Sun, 03 Sep 2006 07:19:24 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3286 I just began reading your posts a couple of weeks ago and still I feel like I've known you longer and my heart just aches for you and your family. My thoughts and healthy vibes are being sent your way. I just can't even imagine how you handle this emotionally. You sound very strong and I admire you. All the best...please keep us posted. I just began reading your posts a couple of weeks ago and still I feel like I’ve known you longer and my heart just aches for you and your family. My thoughts and healthy vibes are being sent your way. I just can’t even imagine how you handle this emotionally. You sound very strong and I admire you.

All the best…please keep us posted.

]]> By: C. L. Hanson http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3284 C. L. Hanson Sun, 03 Sep 2006 06:48:34 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3284 I hope all will be well for your daughter and your family. It's good that you're taking the time to educate yourself about the condition and treatment. I hope all will be well for your daughter and your family.

It’s good that you’re taking the time to educate yourself about the condition and treatment.

]]> By: Jen Olson http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3277 Jen Olson Sun, 03 Sep 2006 00:15:55 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3277 Noell, I was just wondering about Trinity a few days ago, and what the news was with her. Sounds good that the MRI didn't show a tumor. I can imagine how involoved you are with keeping up with her and her care. Thinking of you all, and sending healthy vibes your way. You're keeping up with your major job, as mommy - don't stop. But do try to keep us updated as you have time. ((((((hugs and good vibes)))))) Jen Noell,
I was just wondering about Trinity a few days ago, and what the news was with her. Sounds good that the MRI didn’t show a tumor. I can imagine how involoved you are with keeping up with her and her care. Thinking of you all, and sending healthy vibes your way. You’re keeping up with your major job, as mommy - don’t stop. But do try to keep us updated as you have time.

((((((hugs and good vibes))))))

Jen

]]> By: Jen Olson http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3278 Jen Olson Sun, 03 Sep 2006 00:15:55 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3278 Noell, I was just wondering about Trinity a few days ago, and what the news was with her. Sounds good that the MRI didn't show a tumor. I can imagine how involoved you are with keeping up with her and her care. Thinking of you all, and sending healthy vibes your way. You're keeping up with your major job, as mommy - don't stop. But do try to keep us updated as you have time. ((((((hugs and good vibes)))))) Jen Noell,
I was just wondering about Trinity a few days ago, and what the news was with her. Sounds good that the MRI didn’t show a tumor. I can imagine how involoved you are with keeping up with her and her care. Thinking of you all, and sending healthy vibes your way. You’re keeping up with your major job, as mommy - don’t stop. But do try to keep us updated as you have time.

((((((hugs and good vibes))))))

Jen

]]> By: Elaine http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3275 Elaine Sat, 02 Sep 2006 18:15:04 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3275 I am so sorry to read that your daughter had a second seizure. I hope she does better now. I am so sorry to read that your daughter had a second seizure. I hope she does better now.

]]> By: laura http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3273 laura Sat, 02 Sep 2006 15:51:06 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3273 Oh Noelle,take care of yourself and your family. They always come first. We'll always be here to read whatever you post, no rush. I know you're a great mom, but don't forget about doing stuff for yourself once in a while. Oh Noelle,take care of yourself and your family. They always come first. We’ll always be here to read whatever you post, no rush. I know you’re a great mom, but don’t forget about doing stuff for yourself once in a while.

]]> By: Katherine http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3267 Katherine Sat, 02 Sep 2006 08:34:45 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3267 So sorry to read that, I hope things work out ok for all of you. So sorry to read that, I hope things work out ok for all of you.

]]> By: George A. http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3262 George A. Sat, 02 Sep 2006 04:47:26 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3262 I hope things work out. Stay strong. I hope things work out. Stay strong.

]]> By: Gregg100 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3261 Gregg100 Sat, 02 Sep 2006 04:39:15 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3261 Thank you for sharing your experiences. Since the first time Trinity had a seizure my wife (pediatric nurse many years) has asked me several times if I had heard any more about her. I’m well aware of the stress levels such experiences can precipitate. Let me compliment you on the way you have been working with the medical community. I would like to make some suggestions which you may be far ahead of already. My wife has been through three experiences with cancer. We adapted a strategy that I believe is applicable in general. The strategy is to make sure you have done everything possible to get every last bit of science on your side. While it seems obvious, very few people actually take it seriously and really work the problem. This means taking actions such as: Know your doctors: Ask every question you can think of about their background; schools, class standing, currency classes, associations, participation, etc Know the medical condition: Read everything you can find about the causal conditions (sun, heat, sound, toxic environment), symptoms, how diagnosed, treatment, prognosis (especially get statistical data)uncertainties, latest findings and research, related foundations or organizations, who is working on it and where are they, what journals cover it, where can they be found/read/accessed, are protective provisions required, etc Know the treatments: Study the medications, who makes them, how much do they sell a year, are there generics, what are side effects, how does anyone know the side effects, are there helpful therapies, diets, exercise, what are statistical data about the drugs, FDA approved, any published studies relating to the drugs/therapies, food/drug interactions, etc I’m sure you get the idea. We found a great byproduct of this strategy. We genuinely felt a measure of stress reduction when we were reasonably sure we had done everything we possibly could within available resources. We felt the doctors worked with us much more intelligently and openly when they knew they were talking with someone that was trying everything to help them leave no stone unturned. We never ran into any hostility. I hope we were not just lucky. Since we make choices by using both our instincts/intuition and our education-based rational thinking, it makes sense to bolster our background to the extent possible to maximize the chances of making what prove to have been wise decisions. Thank you for sharing your experiences. Since the first time Trinity had a seizure my wife (pediatric nurse many years) has asked me several times if I had heard any more about her. I’m well aware of the stress levels such experiences can precipitate. Let me compliment you on the way you have been working with the medical community. I would like to make some suggestions which you may be far ahead of already. My wife has been through three experiences with cancer. We adapted a strategy that I believe is applicable in general. The strategy is to make sure you have done everything possible to get every last bit of science on your side. While it seems obvious, very few people actually take it seriously and really work the problem. This means taking actions such as:

Know your doctors: Ask every question you can think of about their background; schools, class standing, currency classes, associations, participation, etc

Know the medical condition: Read everything you can find about the causal conditions (sun, heat, sound, toxic environment), symptoms, how diagnosed, treatment, prognosis (especially get statistical data)uncertainties, latest findings and research, related foundations or organizations, who is working on it and where are they, what journals cover it, where can they be found/read/accessed, are protective provisions required, etc

Know the treatments: Study the medications, who makes them, how much do they sell a year, are there generics, what are side effects, how does anyone know the side effects, are there helpful therapies, diets, exercise, what are statistical data about the drugs, FDA approved, any published studies relating to the drugs/therapies, food/drug interactions, etc

I’m sure you get the idea. We found a great byproduct of this strategy. We genuinely felt a measure of stress reduction when we were reasonably sure we had done everything we possibly could within available resources. We felt the doctors worked with us much more intelligently and openly when they knew they were talking with someone that was trying everything to help them leave no stone unturned. We never ran into any hostility. I hope we were not just lucky.

Since we make choices by using both our instincts/intuition and our education-based rational thinking, it makes sense to bolster our background to the extent possible to maximize the chances of making what prove to have been wise decisions.

]]> By: Mary http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3259 Mary Sat, 02 Sep 2006 03:58:20 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3259 I certainly don't have advice for you, but I do feel for you and wish you and your family the best. I hope for the best -- that everything works itself out over time and without the need for further intervention. I certainly don’t have advice for you, but I do feel for you and wish you and your family the best. I hope for the best — that everything works itself out over time and without the need for further intervention.

]]> By: Karen http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3255 Karen Sat, 02 Sep 2006 01:59:59 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3255 Just remember if your child's brain is misfiring to this extent, "messing with it" might be the only thing to do. Dilantin worked for me just fine, with no side effects. Just remember if your child’s brain is misfiring to this extent, “messing with it” might be the only thing to do. Dilantin worked for me just fine, with no side effects.

]]> By: Happy_Heretic http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3253 Happy_Heretic Sat, 02 Sep 2006 00:20:43 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3253 AgnosticMom: My best to you and your daughter! Being a Neuro-psych I have had many an experience with all types of seizures. Sounds like she is having partial seizures (no convulsions). Luckily they tend to be easily controlled with anti-convulsants (depakote, dilantin, etc). It sounds like your neurologist did a thourough workup. Take care of you, so that you are able to take care of her. I enjoy your writings very much. FSM bless HappyHeretic AgnosticMom:

My best to you and your daughter! Being a Neuro-psych I have had many an experience with all types of seizures. Sounds like she is having partial seizures (no convulsions). Luckily they tend to be easily controlled with anti-convulsants (depakote, dilantin, etc). It sounds like your neurologist did a thourough workup.

Take care of you, so that you are able to take care of her. I enjoy your writings very much.

FSM bless

HappyHeretic

]]> By: Rodolfo http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3252 Rodolfo Sat, 02 Sep 2006 00:12:12 +0000 http://www.agnosticmom.com/2006/09/01/trinitys-health-and-why-i-havent-been-around/#comment-3252 I hope Trinity will be fine. Be strong for your family. I hope Trinity will be fine. Be strong for your family.

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